Max's Big Ride began in 2015 with a father and son 600 km cargo bike ride from Ottawa to Hamilton. We are still going strong in 2020 and will embark on our 6th ride this June. We have two important goals - to increase awareness about Duchenne muscular dystrophy (DMD) and to raise money for research into a cure to save the lives of children with DMD.
100% of donations and all proceeds from our events go to fund research.
Not So Rare Campaign
In Canada, 1 in 12 people are afflicted with a rare disease. That amounts to 3 million people, and two-thirds are children. Together, people with rare diseases are ‘not so rare’.
Canada is one of the few developed countries without a national rare disease strategy to guide diagnosis, treatment and management of rare diseases.
A national strategy for rare diseases would support a plan for:
● Early diagnosis
● Faster access to promising new therapies
● Fair and equal access to supportive care and effective disease management strategies
● Ending the inefficient, two-tiered, federal-provincial system for drug marketing approval and reimbursement of costs for orphan drugs
Please sign our petition calling for a national strategy for rare disease and share it with friends - so we won’t disappear!
Check out this great video about Max’s Big Ride and our partnership with the Gunning Group Lab at the University of Toronto Mississauga.
Check out this incredible video courtesy of Leggat Auto Group about last year's ride.
Click the image above to watch a documentary about the 2015 ride by our awesome friends at Steeltown Chick Productions.